Back on Imuran

On Wednesday Oct 14th a nurse from my rheumatologists office called me & told me per his instruction I am to stay on the maintenance dose of 5mgs of prednisone & to restart the imuran today & go for labs in two weeks which will be Oct 28th. He as well as myself would like to see how my blood levels will do with me being back on imuran. I was initially on 200mgs of imuran when I was first diagnosed & last year was decreased to 150mgs when I moved back to Denver. I have now been instructed to only take 100mgs. Medication changes & maintenance is a part of living life with lupus, it is not fun it is scary & you just never know what side effects if any will occur from changes, that is why as a patient it is always good to listen to your body & always add any input you feel should be discussed with your physician. I know my body reacts in different ways to certain medication, so I try very hard to not overdo it. I was also instructed to keep my appointment for the middle of November & that I will have to do blood work once a month from now on. At this point all I can do is live life & be happy that I get this chance each day. It snowed here in Denver today & I felt it late last night, I have been sore & achey & on top of all of that, I did not fall asleep until 6am after being awake since 8am yesterday. I woke up at around 11am & am now feeling very very sluggish. I have raynauds syndrome, which can occur with lupus often, its where your fingers & hands change different colors in the cold & yes.......it does hurt. I have some very thick gloves that help but not for long periods of time, so I try to avoid the cold weather when I can.
Right now my hands are starting to hurt & I am tired, but know I need to find something quick to eat before the little bit of energy I have is gone.