I was almost sleep & received a phone call from an emergency room nurse, that my labs that I took today, were lower then they were before I was taken off of imuran/azathioprine last Friday. The nurse informed me to stay by the phone, just in case my rheumatologist says that I have to come in & be admitted into the hospital. The nurse also informed me, if Iam by someone who is sick or feeling sick to stay away from them, due to being a lupus patient without an immune system. I know that I dont have an immune system, but am thinking that it is extra low due to the decrease in my prednisone. I have actually been feeling pretty good, no new symptoms, I'm a little more tired then usual but that's about it. I'm on 1mg of prednisone, but I as well as all lupies know that when you start getting down on the prednisone, if you are not in remission then that means, your prednisone is going to be increased, until you & your physician figure out which lupus medications work best for you. Up until this point, I thought my combination of medications were working well enough to put me into remission, well going off of prednisone may not be an option, if you don't know about prednisone it is a steroid that has serious side effects that can cause different things to happen to your body. I was hoping to get off, but if my bodies not ready, then I'm not going to fight it just yet. I'm a pretty strong person & have faith that GOD will get me through all things, & never give me more then I can handle, it is just hard going through the process. This is one of the true reasons that I created http://www.lupiehugs.com/ to help with funds for research & for patients to go into those cold Er's or hospitals with warmth & comfort.
There has not been a drug approved for lupus in 50 years, its sad & heartbreaking. I will continue with my fight to help find a cure, with bad blood or not!!!
I was going to try & go to Chauncey Billups birthday party tonight in hopes of having a good time & seeing some old friends, or just some people I went to high school with, but Lupus always has other plans & my body wouldn't let me get the energy I needed to get dressed.
Be Thankful to GOD for all of your many blessings. the phone hasn't rung again, so I'm going to rest, not stress & try to get some sleep.
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